I'm trying my hardest to stay awake

the predicaments of a teenage spoonie

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It’s kind of rubbish how if you get the flu or something and are off school for a week or two, you’re greeted when you go back with hugs and smiles and ‘Are you okay?’s and ‘What was wrong?’s. While you were ill you might have had people come and visit you with cards or flowers or chocolates.

But when you’ve been ill for months, or years, and no longer go to school, people no longer want to check up on you. They don’t try to understand how you’re feeling or want to know if you’re okay. Sure, they do the polite thing and tell you to get better soon, but inside, you know that that just means they weren’t listening when you said the word chronic. If you go outside, that must mean you’re magically better, why aren’t you back in school? Are you just faking it or something?

But the fact is, you aren’t. You’re ill, you’re still ill, and you will be for quite some time.

I’m kind of fed up with how I’ve been ignored for months on end by many of my so-called ‘friends’ just because I’ve been ill and not in school, it’s not exactly fair…

Filed under fed up chronic illness M.E. CFS chronic fatigue syndrome myalgic encephalomyelitis mythings

  1. skinnyliesandbloodylines reblogged this from living-in-bed
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  6. all-the-other-urls-are-taken said: I’m in a very similar position right now, so I completely get where you’re coming from. It really sucks and I know how powerless and angry you might feel about the whole thing, but hang on in there. I’m always here if you want to talk. <3
  7. living-in-bed posted this